Two months today
 

That my dears is a total of sixty one days,

living the good life...

 

 

Lets go back to last week,

I had just finished writing the blog.

Mike and Beth were savaging into some sweets,

or candy, to you the the US of A....

"Ah sure" I said "I'll have one",

seriously they were tiny.
 

I swear within ten minutes I was out for the count,

I was basically in and  out of consciousness all evening.

It honestly felt like I was coming out of  anesthetic..

Id wake up, look around and "bang" out again.

So that was about 4 o clock Sunday evening,

I ended up going to bed around 10 and had a very fretful nights sleep.
 

Thankfully I was back on track by morning.
 

So I,m wondering, if I had taken more, would It have lasted longer????

I hopefully wont be finding out any time soon!!!

 

Apart from that, I am finding the GF part easy enough.
Its the low carb thing that's really beating my ass.

I haven't really been substituting gluten products for GF products,
I'm just generally eating foods that are naturally gluten free,
 and while its working for my alertness, and brain fog,
 I hear from other narcoleptic people that low carb's along with gluten free is even better results.
 

I do great for like two days then end up eating some Gf carbs!!!!

And so the circle begins again!
 

Considering I have reduced the amount of carbohydrate I'm eating, I haven't lost any more weight!!!!!
Bad times!!!
But on the other hand!
 This is the first time, in my formally bad recent memory, that my weight has been steady!!!
Good times!!!!

Especially considering I'm just two weeks off the smokes!!!!
Good times!!!
So next week I'm going to try harder with the low carbs....
Maybe I,m getting greedy, and wanting too much!
But whats wrong with dreaming....
And whats wrong with trying to make your dreams a reality!!!!
I really feel I have came so far in the last two months. 
 So lets see where else this escapade can bring me!!!!

Ho Ho HO

    

 



56 Days

And counting

 

 

Well folks, 56 days, can you believe it..

I am a week off the ciggies today.

 

The electronic, rechargeable cigarettes are fab.

 

Who would want to smoke real fags, when you have these as an option....

 

The only down side of them is the charge doesn't last the full day.

But to get over that problem, I bought a spare...

 

But then I am a clever bunny ain't I.

 

 Christmas is around the corner.

And do ye know whats been frying my brain???

 

Roast Potatoes!!!!!

 

I don't know how ye all cook um,

But in our house they're par boiled,

 then tossed in flour,

 then put in the roasting tin in hot goose fat...

 

Did ye hear me????

 

Tossed in flour!!!!

 

How else am I going to get that crusty, crunchy finish on them????

 

I'm telling ye, this could make r break Christmas for me...

 

I can do without anything.... but my crunchy roastie's,

 that's asking too much.

 

I've had a great week this week again.

I discovered the restaurant beside my work, make gluten free deserts.....

so maybe the week wasn't such a success after all..lol

I only had it one day though, mmmme panacotta...

soooo goood

They also have chocolate cake....

 

I have to say it really doesn't bother me,

  for the most part anyway,

eating gluten free..

I was at a child's birthday party yesterday,

chicken curry, buns, cake, cheese cake...

All I could say was

 " no, no ,no, no thank you"!!

 

And it didn't knock a flither out of me...

I cant think of anything else this week for ye,

so I'll sign off now

 let me know if ye have a cure for my roasties!

 

marionxx

 

 

f 

17th of November

48 days gluten free.

 

 

That's nearly a lifetime.....

Well I told ye last week that I was back on the anafranil,

 just 10mg and you know what!

I've had a great week.

 

And if taking one tablet,

 and being gluten free keeps me this good,

and I don't need to be anal about what I eat,

as long as it is gluten free.

 

Then I'll take that pill....

 

If you had told me 49 days ago that I would only be taking one pill during the day,

I wouldn't have believed it....

And so my friends.....

 That is progress....

 

I'm loving my new life.

I am slowly getting on top of all the jobs that had lived on  my proverbial long finger...

 

procrastination will soon be a thing of the past.

 

I have so much to get through here on the house.

 Jobs that I had started and never got to finish.

I cant wait to get started on them.

 

I didn't have any cataplexy this week,

and apart from my 20min nap at lunchtime...

 

No other EDS!

 

 This weeks project is going off the ciggies...

I've got my electronic cigarette and was puffing away on that today.....

 

So cross your fingers everyone....

 

This is way harder than going off gluten

 

 



41 Days

 

 

Well folks do you want the good news, or the bad news???

 

Well my good people.... the good news is.... I finally went off the last of my antidepressants last Sunday the 4th of November...

 

The bad news is....... I went back on it today, the 10th of November....

 

I had a tough week, but still nothing compared to b4 gluten free!!

 

I had an appointment with my bio-energy guy on Monday.

He was delighted with my progress to date..

And I have to admit, I was kinda chuffed myself too!

I really wanted to be at least day-time med free by now,
 but I'm just not controlled enough without it!!
 

I fell in a heap in the bank on Friday.

 When yur man was telling I'd have to email this one and that one...just to set up a direct debit...

I was just thinking!

 "ah sweet mother of f***,
I just want to pay a shaggin bill,
not write a letter to the friggin queen"

Well as anyone who has experienced cataplexy attacks will know!

 You can't just think things with out consequence's!!!

Just that thought was enough to have me slum pt over the counter....

The next thought was!

"OH shit, its a long way to the ground,
oh crap I hate tiled floors"

Meanwhile, I could feel yur man looking at me!!
That became my next thought
"oh Jesus yur man must think I'm a freak"

Then there was no more time for thoughts......
Bang I was on the ground, contents of my handbag all over the place......

A hysterical woman, didn't know should she say a rosary or call an ambulance...
Instead she just roared so no-one could miss the very ungraceful, me in a heap on the ground!!

And I was right about the tiles!!!!


 But guess what????
The lovely man who couldn't do anything for me before,
 set up my direct debits, and anything else I wanted done, without the need for all the emails and sh*t......

Happy days...


I think next time I need help with anything, I'm just going to lie on the floor and let them do it for me!!
lol

But it does really give a great opportunity to tell people about narcolepsy!!!!
I'm a one woman awareness campaigner!!!
I really did struggle this week though.
I was even more tired than I had been since going gluten free..... 
So I bit the bullet on Saturday and took 1 10mg anafrinal.... 
I think I will stay on it for a while more.

I guess 10mg of  day time medication is a lot better than 640mg of medications per day.....

Anyhow...
I will love ye and leave ye...
I'v got to catch upwith things....

chat ye later....
 

  

 

 

DAY 35 DAYS DONE!

 

And the dog just ate my gluten free pizza!

 

That was my X factor party pizza!

aaaaahhhhhh

 

 

 

Let me tell ye she got a taste of how mad I was...

 

There I was chasing her out the door with the floor brush, and down I started to go...

Damn cataplexy.....

I didn't go down fully, and boy was I mad.!!

MY FECKIN PIZZA

 

It just goes to prove that this "diet" is working..

Previous to 35 days ago, I would be eating the floor.

 

Oh and I went off that pesky last antidepressant today....

So we will see how this week goes.....

Hopefully I've finally nailed it... 

 

I still had my X factor party!!

 

I had bread rolls in the freezer, so I made Pizza bread, and big flat mushrooms with cheddar cheese and bacon bits.

And a glass or two of vino!!!!

Jeez was X factor sh** though!!!!!

 

The rest of the week was brilliant though.

I honestly have another two to three hours every day.

Imagine!!!

 

 That's like having an extra day every week,

and I still don't have enough hours in the week yet! 

I,m so looking forward to all that's ahead of me.

 

If even one more person gets the results I have gotten.

If one person gets their life back.

I,ll keep blogging, keep going on, and on, and on about gluten free.

 

But remember there is either gluten in something,

or there isn't!!!!

 

Your either gluten free, or your not!!!!

 

Think about it!!!

 

 

 

 

 

Happy Halloween

 

 

Well you'd want to see the big bag of trash my daughter is wading herself through....

Mammy isn't even helping her this year...

And to make matters even better,

Its not even bothering me!!

 

I had to settle for yummy fish cakes made by my own fair hands...

 

I've always loved Halloween. 

 Until nine years ago,that is,  when my Mam decided it would be a good evening to drop dead.

She was only 57 years old, and it was completely out of the blue.

I,m only telling ye this as I was on so much medication at the time I really didn't even have a reaction to her death.

That's the thing!

 I had to take antidepressants to control my cataplexy, which  it did.

My cataplexy was about 85% controlled, which was great but it came at a huge price....

I was completely numb to everything.

Being that untouched by sadness,

 leaves its own mark.

Sadness is an emotion we have to go through,

 even if its just to appreciate happiness??

So I have just one more antidepressant to get off, Then my feelings will be my own....

Good, bad, or indifferent..

 

This week has gone really well so far.

My energy is way up.

My cataplexy is at about 75% controlled,

And apart from taking one 20 minute nap a day, I've had no EDS at all.

 

See yawl.....

 

 

 

 

 



 

Well folks

 

I've been a donkey

Sorry I've not blogged all week.

But I got well and truly glutened!!

Who knew milk shakes were dodgy???

And wow did it hit me like a ton of bricks..

 Monday was a crap day, dozy all day.

I didn't take any day time meds,

so I wasn't sure if it was withdrawal from the antidepressant, or gluten...

Tuesday I was working, and still felt like crap.
I was even told a couple of times....

"jeez Mar you look like shit"

People are so kind...

Had my usual nap at lunchtime, but had to have two more emergency naps.

Tried to write a blog that evening but I was asleep before I started..

By Wednesday I was coming around..

But still far from my former glorious self.

I was still unsure If it was gluten and or going off the meds....

I was also toying with the idea that I possibly had a bad batch of xyrem..

So Thursday I was feeling much better but my cataplexy was playing up!!

So I bit the bullet, and took 10mg of anafrinal..

So Friday I was deffo back on track...

Such a busy day at work,

 which usually has the extra (take the piss out of Marion)

and Friday did not disappoint....

And I didn't buckle once....

Ahhh but Saturday.....

I had the, I don't know what to call it???

 

I was in aw of children, and the parents I met.

Those who, done the responsible thing for their families, and for at least one girl, for the public.

Parents who guided by our government,

brought their children to get the swine flue vaccine, Pandemrixs.

 

Only to be struck down with full blown narcolepsy,  as a result.

 

One girl I met, was a nurse and had to get it to protect the public???

 

I swear I am nearly crying now, thinking of how strong, these 40 odd people affected,

along with their families are....

 

The main thing that struck me was their positivity, and union, in looking for ways forward.

 How to make the best of the situation they have found themselves in..

 

So I was asked to speak to the kids and parents about living with narcolepsy!

  My experience this last month of how doing something as simple as cutting gluten from your diet, can help so much. 

If it helps even one of those people get their life back on track that would be so amazing...

I was nervous to the pit of my stomach, 

 meeting especially the kids. 

 While I did have a five minute snooze, and a few miner cataplexy attacks,

 I couldn't believe I didn't go down...

Well folks I gotta go now...

I'm hitting the town tonight.....

and painting it purple!!!

 

 

 ,