Ten bloody days!!

Can you believe it?

 

Well I can't!  I had a sleep attack today at 1pm, I usually take my nap at 1;30pm, so that was weird!

I literally just closed my eyes for about 2 minutes and I was grand. 

Apart from that I was great all day. 

So no provigal and only 20mg of anafrinal..".Not bad eh"

Oh and did I tell ye I've lost 5lb since i started...

Yea for me!!

I had a GF muesli for breakfast,  a peanut butter sandwich for lunch and the most fab BBQ marinated salmon and rice for dinner! then just fruit and rice cakes for snacks..

I swear the food is great, I've never ate so much, without blowing up!!

I  can't help but wonder is it really the GF that is making me feel better?

I hope to get rid of another anafrinal next week?

Can I really do without them? 

I have to say I am nervous, and I,m not even sure what I'm nervous about?

I don't know life without narcolepsy, cataplexy, sleep paralyses, hallucinations, tiredness, irritability, the buzz from the stimulants, the numbness from the antidepressants.....

Holy crap... what am I at???

 

Later guys!!

Engine engine number nine

 

Man I'm so bad a computer stuff...

I have shared this stuff with ye nine times and I still can't remember how I do it....

I'm not the sharpest knife in the drawer and that's for sure..lol

 

Well thank God day nine was much better than day eight..

Today was brilliant, just brilliant..

You know if I do say so myself, I'm not a bad barber especially when I'm awake...

I would honestly say I did an extra five heads today, not a bother..

I even remember driving to and from work!!! As the Cork lads would say "how bad"...

Or in English that would mean.. "that's progress"

And talk about a happy camper....

 

 

Stay tuned for the next installment....

 



Day Eight.....

Manic Monday

I was a bit bold... and I'm paying the price...

It was only a little purple snack...
And I swear it jumped into my mouth...
I cut out another antidepressant too??
So maybe it wasn't just that pesky purple snack

It brought back all my narco symptoms...

I was dopey, zoning out, Fell asleep in the jacuzzi... at the gym. 
Then there's  that awkward moment when you wake up, (semi naked) to find my also (semi naked) ex cousin in law beside me, and he pretends not to see me....lol The Jacuzzi is not that big!!!
 

Had a slight catoplexy attack when Beth pressed a button on a Halloween toy..

And I was like an Antichrist...

On the plus side.... I wont be doing that again....lol

It really brought back home to me how hard narcolepsy is..

I'm here now yawning my head off, with no energy to do a thing..

So Ill sign off now, and hopefully I'll be back on track tomorrow... 



Sunday makes seven

 Can you believe its been a week!

I am legend!!! lol

 

Right so... the story so far.

Last week I was taking 200mg provigal and 20mg anafrinil at 8am.

Followed by 200mg provigal and 20mg anafrinal at 12pm.

 Night time was 3.75g af xyrem x2

 

This week I'm taking 20mg anafrinal at 8am.

10mg of anafrinal @ 12pm
Night time xyrem is the same as last week.

I have to say I've been a lot more alert. 
 I still have my same nap during the day, usually 20 minutes in the car at lunch time. 
Iv only had one episode of a sleep attack sneaking up on me, but I have to say it was about 2pm on Saturday and I should have had my nap a half hour before that....
The only other thing I've been doing for the last month is leaving my phone down stairs, so I'm not tempted to check out Facebook or have a game of scrabble, and just go back to sleep.... 
If nothing else improves, I think it has been so worth it to stop eating gluten..

I am a little angry though..
Have our doctors not examined this route?
Even if there was the slimmest of chances that this could work, is it not better than poisoning our bodies, and our children's bodies???
AHHHH....
I don't know about other countries but going gluten free in Ireland is really easy,  thanks to the great work the Coeliac society of Ireland  have done, in labeling foods and stringent testing of all gluten free foods. 
Well i should have been knackered all day today as I've worked four long days this week,  but I had a 20 minute nap and that was it.. I also done a load of paperwork with out dropping off!!!!
Happy days....
Oh and I've lost 4lbs....
Happier days....



DDDDDDDDay six.....

 

 

Ahhh lads and ladies I had a great sleep last night.

I took my xyrem at 11 o'clock and didn't wake again till about 3am, took my second dose and slept right through till 8 this morning!!!

How brilliant is that?

Well today went something like this...

Ate  gluten free muesli....check

Drive 20 miles to work........check

Cut loads of mens hair.....check

Had a fab gluten free lunch.... cajun chicken on GF bap...check

Had a 20 min nap in car as usual......check

Cut loads more hair........check

Had GF snack and a coffee....check

Yip you guessed  it!! Cut more hair.......check

Finished at 6pm.......check

Drive 20 miles home..... check

Had steak and veg and potatoes for Dinner.... check

Fixed my dog fence.....check

done a few more jobs.... check

Had a tea party with Beth..... check

Do my blog.......

Again no cataplexy today either.

Feel Great...

Happy Days

 

 

 

 

 

 



Day five folks...

me and
Beth last Halloween
 

 

Well another day over and done...

I was working today, again not a bother.

I swear I feel like a fraud??

Did I really need the provigal?

 How come its been so easy to stop taking it?

How come I feel the same/if not better than if I was on 400mg a day?

It has to be the gluten?

Before this week I would have taken 200mg at 8am, then 200mg at 12pm except on my days off, when, I would have tried to manage on just the morning one. 

 On those days I would have a nap at 1.40pm  after I'd picked my little girl from school, but a lot of times I wouldn't have even lasted that long. 

By maybe 7 o'clock I'd be ready to pan out for the evening!! 

I even ended up going to a meeting last night till about 11 o'clock.

I was working today and I took my nap at 1 o'clock and was grand again for the rest of the day. 

 My boss has even noticed I'm doing better. I haven't told him I'm off one of my pills and gluten.

He said "Jesus Mar your in great ould form this last few days, your flying"

So I guess its going good!

See ye tomorrow!!!

 

 





Beth going for a spin on harry with her cousin
I am hoping I might be the one to teach my little girl to ride.
Wouldn't that be something??

So what are we at here?
 Oh ya day four gluten free

Just had a lovely jubbley roast chicken dinner
Spuds loads of veg, a roast chuck, and even gravy!!
All gluten free of course..
Oh and a cuppa tea and two chocolate biscuits for after..

I has a day off today so got little lady off to school done a heap of ironing, walked the dog bla-bla-bla
No provigal again today just anafrinal for the cataplexy
but I only took 3 instead of four today.
I missed my 1 o clock nap, I just didn't think of it..
By five i needed it though!!
I took half an hour and off I go again..
I'm all done now so i might even sit and watch a bit of TV.
I've had no cataplexy all week either, but maybe nothing was that funny?
 Although did have a right laugh a work yesterday?
I don't know i hate being cynical but you know they say if something seems to good to be true... it usually is!!!
But still so far so good!

Anyway chat soon xx