Day Thirteen...

unlucky for some...

 

Well todays mission was to go off the "fags"

Whatever it is about going off the cigarettes, it always makes my narcolepsy way worse...

Today was no exception, so i didn't quite go off them, but I only had four today...

 

Although I might leave it till next week as I have a wedding on Saturday so that could be my final hurrah....

 

I will try and drop another anafrinil this week.

So one job at a time I think 

 

I have never stuck to a "diet" for this long... ever.

It really makes the differents when your doing something for the right reason...

I'm not trying to be thin! fit into a dress! look hot!

 I WANT TO BE BETTER!!!

 

AND I AM....

 

Later Dudes....



Day 12 already

 

Well day 12 started grand, except first customer was a bollocks!!

Pardon my french like.... but there is no other word for it.. He's one of these, that has a superior opinion about everything and anything, and is always trying to get a rise out of me...

Of course the shop was full when I got there, so no time to put any war paint on, and lord knows I need the slap on... talk about dark circles, of course due to narcolepsy but also hereditary, lord of mercy on my mam, she didn't have bags under her eyes, she had suitcases!!!!!!

And guess what she left me!!!! Good girl mammy!!lol

Anyway back to the "bollocks" in the barber shop...

 

"OH didn't ya do well to make it in?"

 

"I don't know if I should trust ya?"

 

"You obviously had a late one last night!"

 

 So I nailed him... with a sweet angelic smile on my face....

 

"Ah no it was no problem coming in, sure  I'm delighted to come to work"

 

"Don't trust me? Your right... what do the words ..silk purse and sows ear mean to you?"

 

"What do you mean late one?"

 to which he said,

 "on no you just look tired, I presumed you were out?"

 "No I wasn't out, I actually have a neurological disorder called Narcolepsy, which interferes with the sleep wake mechanism, it causes me to have disturbed night time sleep, I get sleep paralyses up to five times a night, Really vivid hallucinations, during the day I have uncontrollable sleep attacks, and I tend to collapse, without loosing consienceness,

when I have laugh, get upset, am nervous, frightened or stressed!!!

 

Lets just day it fairly shut him up...he he he....

 

I was actually feeling a little cataplexy coming on around 11 0clock, but I held it together, and I was grand after I took my second Anafrinal at 12 o'clock.

Apart from that I was flying all day.

The bread was fabulous straight out of the oven, but not great for lunch..I used it for garlic bread later and it was fabulous!!

I'm going off the cigarettes again tomorrow so that will be harder than any gluten free diet so keep your fingers crossed for that

 

Ill sign off now.....

chow!!

 

 

 

 

 

Day eleven....

Can ye smell it???

Baked with my very own hands, with a little help from little Betty my six year old prodidgy....lol

The gluten free flour that i used, the consistancy is weird, a little like corn flour..

ITs Odlums Tritamyl self raising flour.

12oz/350g flour

12oz/350ml milk

15ml/1tblspoon of veg oil

 mix together

bung in a lightly greased loaf tin

40/45 minutes @200oc/400of

real butter all over crust and wrap in a damp tea towel...

makes crust extra tasty...

Anyway today started great, doing little jobs all day.

I'm starting to get on top of jobs I have left on the "long finger..."

I'm clearing through them, one by one...

I didn't have a nap today till nearly five o clock,

so I was feeling a little Falley down... as in I felt if I did let myself go, I would have had Cataplexy attacks!!!

That lasted from about 3oclock till I took a nap!!

Apart from that I was grand all day, a little irritable by this evening though....

Lets see what tomorrow brings....

Its really hard to judge my days off as they follow now real form?

I know what I'm having for lunch tomorrow though...

Now what will I have with it?? 

Beth has ordered it for her lunch too...

Later guys.... 

 

Ten bloody days!!

Can you believe it?

 

Well I can't!  I had a sleep attack today at 1pm, I usually take my nap at 1;30pm, so that was weird!

I literally just closed my eyes for about 2 minutes and I was grand. 

Apart from that I was great all day. 

So no provigal and only 20mg of anafrinal..".Not bad eh"

Oh and did I tell ye I've lost 5lb since i started...

Yea for me!!

I had a GF muesli for breakfast,  a peanut butter sandwich for lunch and the most fab BBQ marinated salmon and rice for dinner! then just fruit and rice cakes for snacks..

I swear the food is great, I've never ate so much, without blowing up!!

I  can't help but wonder is it really the GF that is making me feel better?

I hope to get rid of another anafrinal next week?

Can I really do without them? 

I have to say I am nervous, and I,m not even sure what I'm nervous about?

I don't know life without narcolepsy, cataplexy, sleep paralyses, hallucinations, tiredness, irritability, the buzz from the stimulants, the numbness from the antidepressants.....

Holy crap... what am I at???

 

Later guys!!

Engine engine number nine

 

Man I'm so bad a computer stuff...

I have shared this stuff with ye nine times and I still can't remember how I do it....

I'm not the sharpest knife in the drawer and that's for sure..lol

 

Well thank God day nine was much better than day eight..

Today was brilliant, just brilliant..

You know if I do say so myself, I'm not a bad barber especially when I'm awake...

I would honestly say I did an extra five heads today, not a bother..

I even remember driving to and from work!!! As the Cork lads would say "how bad"...

Or in English that would mean.. "that's progress"

And talk about a happy camper....

 

 

Stay tuned for the next installment....

 



Day Eight.....

Manic Monday

I was a bit bold... and I'm paying the price...

It was only a little purple snack...
And I swear it jumped into my mouth...
I cut out another antidepressant too??
So maybe it wasn't just that pesky purple snack

It brought back all my narco symptoms...

I was dopey, zoning out, Fell asleep in the jacuzzi... at the gym. 
Then there's  that awkward moment when you wake up, (semi naked) to find my also (semi naked) ex cousin in law beside me, and he pretends not to see me....lol The Jacuzzi is not that big!!!
 

Had a slight catoplexy attack when Beth pressed a button on a Halloween toy..

And I was like an Antichrist...

On the plus side.... I wont be doing that again....lol

It really brought back home to me how hard narcolepsy is..

I'm here now yawning my head off, with no energy to do a thing..

So Ill sign off now, and hopefully I'll be back on track tomorrow... 



Sunday makes seven

 Can you believe its been a week!

I am legend!!! lol

 

Right so... the story so far.

Last week I was taking 200mg provigal and 20mg anafrinil at 8am.

Followed by 200mg provigal and 20mg anafrinal at 12pm.

 Night time was 3.75g af xyrem x2

 

This week I'm taking 20mg anafrinal at 8am.

10mg of anafrinal @ 12pm
Night time xyrem is the same as last week.

I have to say I've been a lot more alert. 
 I still have my same nap during the day, usually 20 minutes in the car at lunch time. 
Iv only had one episode of a sleep attack sneaking up on me, but I have to say it was about 2pm on Saturday and I should have had my nap a half hour before that....
The only other thing I've been doing for the last month is leaving my phone down stairs, so I'm not tempted to check out Facebook or have a game of scrabble, and just go back to sleep.... 
If nothing else improves, I think it has been so worth it to stop eating gluten..

I am a little angry though..
Have our doctors not examined this route?
Even if there was the slimmest of chances that this could work, is it not better than poisoning our bodies, and our children's bodies???
AHHHH....
I don't know about other countries but going gluten free in Ireland is really easy,  thanks to the great work the Coeliac society of Ireland  have done, in labeling foods and stringent testing of all gluten free foods. 
Well i should have been knackered all day today as I've worked four long days this week,  but I had a 20 minute nap and that was it.. I also done a load of paperwork with out dropping off!!!!
Happy days....
Oh and I've lost 4lbs....
Happier days....