SWEET 16

And been kissed a few times....

oh the memories...lol

 

Jesus lads when I think of all I've been through this last 10 years, and then some...

 

I moved back home after spending six years living it large in Chicago.

Within six months of me coming home my Cataplexy had started.

It started with my legs going weak, when ever I was taking the "piss" out of some one!

Which I did a lot!!!!lol

 

I'd be working in the barber shop, and would tease a kid, oops knees gone again!!

It continued like that for a while.

 

 At home in my home house, was always a hive of activity.

I have eight siblings, all grown up at this stage,

but there was a couple still living at home.

 

Our house was always where everyone gathered,

all our family, neighbours, sisters boyfriends, their brothers and sisters...

I,m telling ye..... A MAD HOUSE..

Mam was a baker, and one hell of a cook so she was always feeding the "strays" lol

There was always some sort of "Piss pulling" and I was usually in the thick of it...

So it was inevitable that that's where I was to have the first of my ten years of total collapses!!

 

I will never forget it as long as I live.

We obviously new something was up.

 I new it was narcolepsy!

 

My friend had given me an article where all my symptoms were there in front of me...

It was so surreal reading a story,

someone elses story, but it could have been me that wrote it, that's if I could have put it into words...

 

I remember thinking when I read the article," well I,m not as bad as her", so when the total collapses started to happen, I knew..... I was as bad as her...

I was devastated.....

 

 Me and dad were slagging each other off about an umbrella!!!

When I collapsed on a kitchen chair at first,

 I tried with everything I had to stop it there,

but Cataplexy had other ideas for me...

I tried to stay on that chair, but my body couldn't hold me..

I tumbled off the chair, face down on the ground.

my jaw was clenching,

 my neck drawn back,

 I couldn't stop it,

 I tried to talk,

 I couldn't,

My eyes were rolling,

It felt like a "fit"

 

Mam came over to me panicked....

Dad shouts at her to leave me....

I'm still on the ground trying to make it stop.

 

Finally it does stop....

I get up off the ground.

embarrassed,

Humiliated,

sick to my stomach.

 

The look of shock and pity on everyones face was worse than anything.....

 

Nobody spoke....

 

 I went out the kitchen door, lit a fag, and cried my eyes out.....

 

After a few minutes my eleven year old niece came out to me.... and gave me a great big hug....

I said "did it look awful", she said " it wasn't that bad"

 

Ironically tomorrow is the tenth anniversary of my diagnosis......

 

 Ten years later I cannot believe Gluten Free has changed my life.

 So much so, I'm excited about my future....

Yes I still have narcolepsy...

 

But right now I don't feel like I do.....

 

sorry guys... gotta go....

chat soon....