My name is Marion Roache an I have Narcolepsy.

I have been gluten free for 17 days.

 Round of applause please..lol

 

Today its ten years since I was diagnosed!!!

OMG

 

I shared this with my friends back in September.

It came about after a conversation with a customer!!

 

 

 

 

 

Someone asked a question lately, I don't know who, or when!!! Lol...

 My brain seems to be constantly foggy, narcolepsy is not just about the sleeping!!! Anyway the question was if they found a cure for narcolepsy would you take it!!!
Now a few years ago I would have jumped at it....

 But I really had to think..

 I suppose I have had it for so long now that it has become part of who I am...

 I have

learned to accept my medications, my naps, my limitations...

I have learned so much from having narcolepsy,

 and I have learned to appreciate all the things I still can do,

 and all the things I can get away without doing!!!

 I have to admit I have been known to "use" narcolepsy as an excuse to get out of things I don't want to do..

 So how would I avoid them if I didn't have narcolepsy????

 With my medications and regular naps I can controll it most of the time..

 And even the cataplexy has given me so many funny stories...

 Like holding Bruce Springsteens ass...

 Talk about a dream come true...I would never have gotten that oppertunity without narcolepsy....

 This has becom my normality...

 And I suppose change is always scary...

 So I'd have to think long and hard about a "cure" I don't think I'd be "me" without narcolepsy...

 

I actually wrote that?

 And believed it!!!!

ha....

 

************************************

 

Just the next day  I posted this on my time line.....

 

 

What the hell was I raving about earlier.....
I went to Horkans this evening..

It's a big garden centre and pet store for those of you who don't know it.. Anyway I was getting dog food, and Beth was looking at the rabbits and stuff...

I was going back to the till, with one of the girls that work there,

 and was passing where Beth was..

 So Beth says" hey mam look at these"

  next thing I was flat out on...

the ground....

 

She had been looking at hamsters, and as far as I'm concerned they're rats... Another woman that works there was like

" what's wrong with her",

the girl that was with me says

 "I think she's fooling with her kid"

 Fair play to Beth she told them "my mam has narcoklepsy!!

  I was on the ground for at least 2 minutes..

 

 You'd want to see the looks I got when I got up....

 I honestly think they though I was off my head!!!!

 

 It has been a while since I had a cataplectic attack in front of strangers.

 I'd kinda forgotten how awkward it is, when you have to try and explain to strangers,

 who really are not listening to your words,

 they are just judging you!! 

 

So forget what I was saying earlier..

 

 I want a cure for narcolepsy!!!

 

********************************************************

 

I was looking into the gluten free thing at the time,

so this made my mind up for me!!!!

 

Today was brilliant again.

I actually stood having the "Craic"with my boss this evening.... and I SO should have fallen down!!

I even stopped mid sintence, and waited for a cataplexy attack....

 NOTHING!!!

Not even a knee jerk.....

 

I'm not going to speak to soon but WOW!!!

 

Im seeing my sleep specalist tommorrow so lets see what she has to say about my adventures this last 17 days!!!!!

 

Ill let you know tomorrow how I get on...