Beth going for a spin on harry with her cousin
I am hoping I might be the one to teach my little girl to ride.
Wouldn't that be something??

So what are we at here?
 Oh ya day four gluten free

Just had a lovely jubbley roast chicken dinner
Spuds loads of veg, a roast chuck, and even gravy!!
All gluten free of course..
Oh and a cuppa tea and two chocolate biscuits for after..

I has a day off today so got little lady off to school done a heap of ironing, walked the dog bla-bla-bla
No provigal again today just anafrinal for the cataplexy
but I only took 3 instead of four today.
I missed my 1 o clock nap, I just didn't think of it..
By five i needed it though!!
I took half an hour and off I go again..
I'm all done now so i might even sit and watch a bit of TV.
I've had no cataplexy all week either, but maybe nothing was that funny?
 Although did have a right laugh a work yesterday?
I don't know i hate being cynical but you know they say if something seems to good to be true... it usually is!!!
But still so far so good!

Anyway chat soon xx




 

Day 2

Tuesday the 2nd of October

 

 Well day one got off to a bad start.  I took my pills in the morning only to find out Provigal has gluten in it.... ahhhhhh

 Anyway whats done is done,so i decided not to take my second dose, and continued on my GF mission. 

 

 I got a book on coeliac disease as coeliacs need to be completely gluten free, so I figured I need to do it wholeheartedly. I knew dam all about it, and it was a real eye opener!! So I would defiantly get a book like that.. Then I just planned a day ahead. Scrambled egg for breakfast, salad for lunch and fried mince with veg cooked wih a knor stock pot and mash.. Yummy , for snacks I had rice cakes, yogurt, and fruit!! Easy peasy! It's definitely worth a try!

 Also I've started a Facebook account for teens/ secondery students with narcolepsy to chat to each other about what they're facing and how they are getting on with it. It's under the name "Yawn Ireland" I'm there to answer any questions they might have. And introduce them to each other. I really think it is something that can help them get to grips with things.

Now back to my mission... it was my first full day off Provigal.  I had been on 400mg a day and even if i missed one by a couple of hours i would know it..

Today I didnt even miss it. I had my usual nap at lunch time and was fine driving there and back. I even done a few jobs when i got home!!!

Surely the Gluten free thing couldn't be working so quickly???

 

(by the way i am not incouraging anyone to give up any medication..) I am just telling my story, fact not fiction, the good the bad and the ugly... 

Gluten free for narcolepsy: gluten free for narcolepsy

Gluten free for narcolepsy: gluten free for narcolepsy: hello all Ok so the story so far.... Iv been diagnosed with narcolepsy for nearly 10 years now.. im on a fair bit of medication, which i h...