08 April 2013

complacency is not my friend!

OVER SIX MONTHS AND COUNTING


 
Its funny...
 I started to get a little cocky after my last post.
 
Oh ya this gluten free craic is easy...
And yes it is for the most part,
 but complacency is not a friend when you are on a mission....
 
Although I try and stay low carb as well as GF, I find the LC the hardest part...
Anyway to make a long story short, I goofed up...
 
I question the GF thing constantly...
I seem to forget how bad my symptoms were!!
 
I know I do way way way better GF/LC.
I sometimes choose to forget the LC part...
Hey I'm Irish, we love our spuds!!!!
And yes my EDS plays up when I don't keep my carbs low.....
 I can live with that now and then!!
 
But the real goof up was GLUTEN.
 
Movie night with my kid.
I picked up some chocolates that I thought were GF.
 
I didn't check the wrapper, I had had (similar) ones before and they were fine!
I thought nothing more of it until I went to bed...
 
OMG
 
What a crap night.
 
I took my usual dose of xyrem but was awake 20 minutes later, my mind was all over the place.
Nagging pains in my ankles, that I had not had in months!
Sleep paralysis, hallucinations, clock ticking so slowly......
Finally its time for my second dose....
Less than an hour later I was awake again...
It was a night from hell.
It was full blown Narcolepsy..
 
I checked the wrapper the next morning....
and there listed in plain sight was "wheat flour"
Doh.......
 
IT was how my nights used to be.
Oh my lord.
 I had four nights of that, and by God it has confirmed to me, yet again, how much better my life is since going GF.
How did I survive all those years with nights like that?
 
My days as a result  of the gluten goof up,
 were back to the not so good old days, of EDS, constant fatigue, micro sleeps and auto behaviour.
 
The pains in my ankles was something I hadn't noticed getting better, it was just something I had had for years.
 I'd been to a ruematoligist and everything about it, and we had put it down to me having sprained both ankles and it was just something I would have to live with!!!
Anyway I'm back on track, and enjoying even more the benefits of GF.
I seen my sleep doctor during the week, and she couldn't have been more positive.
We discussed the whole thing, even my gluten slip up and now I'm going to try and cut out my xyrem bit by bit....
I do know to get the full benefits I will have to cop on, and sort my carb intake out.
But it will be so worth it, if at the end of the day I can live my life...
 completely without meds!
 
But even just being GF has given me so much.
 
Later folks!!