Well folks

 

I've been a donkey

Sorry I've not blogged all week.

But I got well and truly glutened!!

Who knew milk shakes were dodgy???

And wow did it hit me like a ton of bricks..

 Monday was a crap day, dozy all day.

I didn't take any day time meds,

so I wasn't sure if it was withdrawal from the antidepressant, or gluten...

Tuesday I was working, and still felt like crap.
I was even told a couple of times....

"jeez Mar you look like shit"

People are so kind...

Had my usual nap at lunchtime, but had to have two more emergency naps.

Tried to write a blog that evening but I was asleep before I started..

By Wednesday I was coming around..

But still far from my former glorious self.

I was still unsure If it was gluten and or going off the meds....

I was also toying with the idea that I possibly had a bad batch of xyrem..

So Thursday I was feeling much better but my cataplexy was playing up!!

So I bit the bullet, and took 10mg of anafrinal..

So Friday I was deffo back on track...

Such a busy day at work,

 which usually has the extra (take the piss out of Marion)

and Friday did not disappoint....

And I didn't buckle once....

Ahhh but Saturday.....

I had the, I don't know what to call it???

 

I was in aw of children, and the parents I met.

Those who, done the responsible thing for their families, and for at least one girl, for the public.

Parents who guided by our government,

brought their children to get the swine flue vaccine, Pandemrixs.

 

Only to be struck down with full blown narcolepsy,  as a result.

 

One girl I met, was a nurse and had to get it to protect the public???

 

I swear I am nearly crying now, thinking of how strong, these 40 odd people affected,

along with their families are....

 

The main thing that struck me was their positivity, and union, in looking for ways forward.

 How to make the best of the situation they have found themselves in..

 

So I was asked to speak to the kids and parents about living with narcolepsy!

  My experience this last month of how doing something as simple as cutting gluten from your diet, can help so much. 

If it helps even one of those people get their life back on track that would be so amazing...

I was nervous to the pit of my stomach, 

 meeting especially the kids. 

 While I did have a five minute snooze, and a few miner cataplexy attacks,

 I couldn't believe I didn't go down...

Well folks I gotta go now...

I'm hitting the town tonight.....

and painting it purple!!!

 

 

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