17th of November

48 days gluten free.

 

 

That's nearly a lifetime.....

Well I told ye last week that I was back on the anafranil,

 just 10mg and you know what!

I've had a great week.

 

And if taking one tablet,

 and being gluten free keeps me this good,

and I don't need to be anal about what I eat,

as long as it is gluten free.

 

Then I'll take that pill....

 

If you had told me 49 days ago that I would only be taking one pill during the day,

I wouldn't have believed it....

And so my friends.....

 That is progress....

 

I'm loving my new life.

I am slowly getting on top of all the jobs that had lived on  my proverbial long finger...

 

procrastination will soon be a thing of the past.

 

I have so much to get through here on the house.

 Jobs that I had started and never got to finish.

I cant wait to get started on them.

 

I didn't have any cataplexy this week,

and apart from my 20min nap at lunchtime...

 

No other EDS!

 

 This weeks project is going off the ciggies...

I've got my electronic cigarette and was puffing away on that today.....

 

So cross your fingers everyone....

 

This is way harder than going off gluten

 

 



41 Days

 

 

Well folks do you want the good news, or the bad news???

 

Well my good people.... the good news is.... I finally went off the last of my antidepressants last Sunday the 4th of November...

 

The bad news is....... I went back on it today, the 10th of November....

 

I had a tough week, but still nothing compared to b4 gluten free!!

 

I had an appointment with my bio-energy guy on Monday.

He was delighted with my progress to date..

And I have to admit, I was kinda chuffed myself too!

I really wanted to be at least day-time med free by now,
 but I'm just not controlled enough without it!!
 

I fell in a heap in the bank on Friday.

 When yur man was telling I'd have to email this one and that one...just to set up a direct debit...

I was just thinking!

 "ah sweet mother of f***,
I just want to pay a shaggin bill,
not write a letter to the friggin queen"

Well as anyone who has experienced cataplexy attacks will know!

 You can't just think things with out consequence's!!!

Just that thought was enough to have me slum pt over the counter....

The next thought was!

"OH shit, its a long way to the ground,
oh crap I hate tiled floors"

Meanwhile, I could feel yur man looking at me!!
That became my next thought
"oh Jesus yur man must think I'm a freak"

Then there was no more time for thoughts......
Bang I was on the ground, contents of my handbag all over the place......

A hysterical woman, didn't know should she say a rosary or call an ambulance...
Instead she just roared so no-one could miss the very ungraceful, me in a heap on the ground!!

And I was right about the tiles!!!!


 But guess what????
The lovely man who couldn't do anything for me before,
 set up my direct debits, and anything else I wanted done, without the need for all the emails and sh*t......

Happy days...


I think next time I need help with anything, I'm just going to lie on the floor and let them do it for me!!
lol

But it does really give a great opportunity to tell people about narcolepsy!!!!
I'm a one woman awareness campaigner!!!
I really did struggle this week though.
I was even more tired than I had been since going gluten free..... 
So I bit the bullet on Saturday and took 1 10mg anafrinal.... 
I think I will stay on it for a while more.

I guess 10mg of  day time medication is a lot better than 640mg of medications per day.....

Anyhow...
I will love ye and leave ye...
I'v got to catch upwith things....

chat ye later....
 

  

 

 

DAY 35 DAYS DONE!

 

And the dog just ate my gluten free pizza!

 

That was my X factor party pizza!

aaaaahhhhhh

 

 

 

Let me tell ye she got a taste of how mad I was...

 

There I was chasing her out the door with the floor brush, and down I started to go...

Damn cataplexy.....

I didn't go down fully, and boy was I mad.!!

MY FECKIN PIZZA

 

It just goes to prove that this "diet" is working..

Previous to 35 days ago, I would be eating the floor.

 

Oh and I went off that pesky last antidepressant today....

So we will see how this week goes.....

Hopefully I've finally nailed it... 

 

I still had my X factor party!!

 

I had bread rolls in the freezer, so I made Pizza bread, and big flat mushrooms with cheddar cheese and bacon bits.

And a glass or two of vino!!!!

Jeez was X factor sh** though!!!!!

 

The rest of the week was brilliant though.

I honestly have another two to three hours every day.

Imagine!!!

 

 That's like having an extra day every week,

and I still don't have enough hours in the week yet! 

I,m so looking forward to all that's ahead of me.

 

If even one more person gets the results I have gotten.

If one person gets their life back.

I,ll keep blogging, keep going on, and on, and on about gluten free.

 

But remember there is either gluten in something,

or there isn't!!!!

 

Your either gluten free, or your not!!!!

 

Think about it!!!

 

 

 

 

 

Happy Halloween

 

 

Well you'd want to see the big bag of trash my daughter is wading herself through....

Mammy isn't even helping her this year...

And to make matters even better,

Its not even bothering me!!

 

I had to settle for yummy fish cakes made by my own fair hands...

 

I've always loved Halloween. 

 Until nine years ago,that is,  when my Mam decided it would be a good evening to drop dead.

She was only 57 years old, and it was completely out of the blue.

I,m only telling ye this as I was on so much medication at the time I really didn't even have a reaction to her death.

That's the thing!

 I had to take antidepressants to control my cataplexy, which  it did.

My cataplexy was about 85% controlled, which was great but it came at a huge price....

I was completely numb to everything.

Being that untouched by sadness,

 leaves its own mark.

Sadness is an emotion we have to go through,

 even if its just to appreciate happiness??

So I have just one more antidepressant to get off, Then my feelings will be my own....

Good, bad, or indifferent..

 

This week has gone really well so far.

My energy is way up.

My cataplexy is at about 75% controlled,

And apart from taking one 20 minute nap a day, I've had no EDS at all.

 

See yawl.....

 

 

 

 

 



 

Well folks

 

I've been a donkey

Sorry I've not blogged all week.

But I got well and truly glutened!!

Who knew milk shakes were dodgy???

And wow did it hit me like a ton of bricks..

 Monday was a crap day, dozy all day.

I didn't take any day time meds,

so I wasn't sure if it was withdrawal from the antidepressant, or gluten...

Tuesday I was working, and still felt like crap.
I was even told a couple of times....

"jeez Mar you look like shit"

People are so kind...

Had my usual nap at lunchtime, but had to have two more emergency naps.

Tried to write a blog that evening but I was asleep before I started..

By Wednesday I was coming around..

But still far from my former glorious self.

I was still unsure If it was gluten and or going off the meds....

I was also toying with the idea that I possibly had a bad batch of xyrem..

So Thursday I was feeling much better but my cataplexy was playing up!!

So I bit the bullet, and took 10mg of anafrinal..

So Friday I was deffo back on track...

Such a busy day at work,

 which usually has the extra (take the piss out of Marion)

and Friday did not disappoint....

And I didn't buckle once....

Ahhh but Saturday.....

I had the, I don't know what to call it???

 

I was in aw of children, and the parents I met.

Those who, done the responsible thing for their families, and for at least one girl, for the public.

Parents who guided by our government,

brought their children to get the swine flue vaccine, Pandemrixs.

 

Only to be struck down with full blown narcolepsy,  as a result.

 

One girl I met, was a nurse and had to get it to protect the public???

 

I swear I am nearly crying now, thinking of how strong, these 40 odd people affected,

along with their families are....

 

The main thing that struck me was their positivity, and union, in looking for ways forward.

 How to make the best of the situation they have found themselves in..

 

So I was asked to speak to the kids and parents about living with narcolepsy!

  My experience this last month of how doing something as simple as cutting gluten from your diet, can help so much. 

If it helps even one of those people get their life back on track that would be so amazing...

I was nervous to the pit of my stomach, 

 meeting especially the kids. 

 While I did have a five minute snooze, and a few miner cataplexy attacks,

 I couldn't believe I didn't go down...

Well folks I gotta go now...

I'm hitting the town tonight.....

and painting it purple!!!

 

 

 ,

 

 

 

 

 

 

 

Day 20/21

 

Well guys did ye miss me......

 

I was at a wedding yesterday,  and an Irish wedding, is an all day event.

 

The wedding was at 1pm,  and we got home at 3am.

With no nap....

 

Yes ye heard me.... no sleepy time for Marion.

 

That my friends is unheard of,  for me anyway.

 

Usually at a wedding I would have at least a half an hour after the meal, but probably 2 naps in the day, either in the hotel room, or car.

 

Unbelievable.....

 

After I rang the hotel before the wedding, I was reassured that  they "got" the gluten free thing....

 

I was wrong!!!

 

When the server was going around asking peoples choice for the main course,

 I told the server I had called ahead, and specified gluten free diet, and ordered the beef.....

 

It also stated on the menu that a gluten free menu was available! (ask server).........

 

Done!!!!

 

So starters came out.

 vola-vaunts and potato skins...

 

I got a melon...

ahhhhhhhh

 

Then out with the soup

 (which was ceoliac friendly)

Down it came to the table, with croutons floating about in it......

 

So I pointed this out to the server quietly,

 and she took it away and brought out another one without the floaters.....

 

Phew.....

 catastrophe averted.

 

Now on to the main course....

 

So out comes the plates....

Down with my plate of gluten free beef...

with gluten free gravy on the side..

Yes!!!!!!

 

Ah no!!!!

  There was a Yorkshire freaking pudding, and a potato croquette

WTF...

 

So I call the waitress over AGAIN...

I swear I never complain or moan, when I,m out to eat...

 But this was getting blooming ridicules...

So she brings me another one......

 

The mash potatoes, and veg is left on the table for everyone....

But the veg was cubed carrots and turnip on one side of the bowl and cauliflower and broccoli, with a cheese sauce!!!

 

Hmmmm???

 whats cheese sauce made from???

 

So I call the waitress again, cringing...

I quietly ask for veg without sauce on it...

 

So one more course...

While everyone enjoyed a selection of ice cream...

In a nest!!!!!

 

I had fruit salad....

Yummy!!!

 

Boy that was hard work....

I felt like an awkward old nag...

I hated having to scrutinise every last mouthful.

 

I will email the hotel tomorrow and give them feedback on their version of gluten free food!!!

 

As for the rest of the day, it was great....

I did have a little cataplexy attack, knee jerk, eye roll!! 

 But boy was I funny......

 I would honestly say that before going off my meds, I would have had a total collapse in that situation...

I danced, had the craic, drank brandy,and had a ball....

 One of the best parts is that I was grand today...

Pre gluten free I would have been,  (falley down) as I called it, today...

Instead I was out farming this morning,

 then met up with friends at a football match, (which we lost)

Then home and done a few jobs around the house...

There is no way on earth i would have been able to do all this in two consecutive days....

No way, no how.... never....

 

So I'm three weeks done...

and can honestly say its the best decision i ever made in my life......

Life..... that's what I have now,

instead of an existence...

 

I,m going to cut the blog down to twice a week now, unless there is a revelation you need to know about..

 

later guys....

thanks for all your incouragment....

 

 

 

 

 

 

 

 

 

 

 



19 days on the gluten wagon

 

Well  I've had the best 19 days.

Still feeling blooming mighty.

 

I've a wedding tomorrow, so that will test me.

I rang the hotel to order a gluten free meal, and happily all the hotels soups and sauces are coeliac friendly.....

 

Isn't that nice!!

 

I have to say, as much as this little country of ours sucks sometimes, its a great place to be gluten free.

 

Fair play to the ceoliac sociaty's for promoting gluten free eating, and educating the catering comunity on their needs.

Maybe us people with narcolepsy could take a leaf out of their book?

Today was another good one, as was yesterday.

In fact I've had a mad week so I should be knackered by now.

But I,m grand.

Time now to do some serious preening for tomorrow.